Beyond managing my disease and how it affects my whole life, I have also becoming increasingly aware of being a Patient in a health system.
Health systems exist to relieve suffering; they are about helping people with health issues, hopefully even to prevent suffering in the first place. On some levels huge progress has been made, reflected by increasing life expectancy and ever more complex treatments. However health systems everywhere are in crisis and they are often fulfilling their purpose inadequately. Health systems are sick and need treatment as well!